A
ABORIGINAL HIV/AIDS STRATEGY
1-800-743-8851
Health education, health promotion, and counselling and assistance to Aboriginal peoples living with HIV/AIDS
ABOUT FACE INTERNATIONAL
1-800-665-3223
information and emotional support for individuals who have facial differences and their families; networking; community awareness and education; resource/video library for members
ACOUSTIC NEUROMA ASSOCIATION OF CANADA
1-800-561-2622
patient-headed, peer support group to provide support and info to those who have experienced acoustic neuromas, or other tumours affecting cranial nerves; provide rehab info to doctors and health care workers; promote and support research
ACTIVE LIVING ALLIANCE FOR CANADIANS WITH DISABILITY
1-800-771-0663
promote inclusion and active living lifestyles of Canadians with disabilities by facilitating communication and collaboration among organisations, agencies and individuals; newsletter
ADDICTION RESEARCH FOUNDATION (Ontario only) (Now part of the Centre for Addiction and Mental Health)
1-800-INFO-ARF (463-6273)
drug, alcohol, and mental health information line; information available in Eng., Fr. and other languages.
AIDS AND SEXUAL HEALTH INFOLINE (Ontario Ministry of Health)
1-800-668-2437
M-F 9am – 11:30pm, Sat., Sun. 11-4, information; referrals; counselling; multilingual
AIDS BUREAU (Ontario Ministry of Health)
1-800-268-6066
advisory committee on AIDS related issues; funding to community based groups; educational AIDS related information to the public
AL-ANON/AL-ATEEN MEETING INFORMATION LINE
1-800-714-7498
information; referral to support groups for relatives, family and friends of alcoholics
ALLERGY AND ASTHMA NETWORK- MOTHERS OF ASTHMATICS (USA)
1-800-878-4403
helping individuals affected by asthma and allergy through education, support, and resources;
membership
ALLERGY ASTHMA INFORMATION ASSOCIATION
1-800-611-7011
information and counselling on management of and special products for allergies, asthma and
anaphylaxis
ALLIANCE OF GENETIC SUPPORT GROUPS, see GENETIC ALLIANCE GENETICS
EDUCATION & RESOURCE CENTRE
ALPHA-1 ANTITRYPSIN DEFICIENCY CANADIAN REGISTRY
1-800-352-8186
information and support
ALZHEIMER’S ASSOCIATION (USA)
1-800-272-3900
chapter formation; advocacy; patient and family services; newsletter
ALZHEIMER’S SOCIETY OF CANADA
1-800-616-8816
to alleviate the personal and social consequences of Alzheimer disease; to promote the search for
the cause and cure; to provide support to persons with Alzheimer disease and related conditions,
their relatives and/or care providers
AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION
1-800-598-4668
dedicated to bringing focus to autoimmunity
AMERICAN BEHCET’S DISEASE ASSOCIATION
1-800-723-4238
self-help organization dedicated to providing support and informational materials to people with
Behcet’s Disease
AMERICAN SYRINGOMYELIA ALLIANCE PROJECT (ASAP)
1-800-272-7282
clearinghouse for information on syringomyelia
AMYOTROPHIC LATERAL SCLEROSIS SOCIETY OF CANADA (Lou Gerhig’s disease)
1-800-267-4257
to provide care and to find the cure for Amyotrophic Lateral Sclerosis; provides
educational materials and support to a network of over 30 provincial and chapter offices;
phone-in services for individuals
AND CANADA, see ASSOCIATION FOR NEUROLOGICALLY DISABLED OF CANADA
ANXIETY DISORDERS ASSOCIATION OF ONTARIO
1-877-308-3843
support groups; educational materials and classes; companion support; referrals; phone support;
seminars and presentations; M-Th. 10-4
APLASTIC ANEMIA AND MYELODYSPLASIA ASSOCIATION OF CANADA
1-888-840-0039
to disseminate information concerning the disease; to form a nation-wide support network for
patients, families and medical professionals; to support the Canadian Blood Services program; to
raise funds for research
APLASTIC ANAEMIA AND MYELODYSPLASIA FOUNDATION OF AMERICA
1-800-747-2820
international voluntary health organization dedicated to serving as a resource for assistance and
emotional support for people with aplastic anaemia, myelodysplastic syndromes, and other bone
marrow failure diseases
ARTHRITIS SOCIETY (Ontario Division)
1-800-321-1433
10am - 4pm; to search for the underlying causes and subsequent cure of arthritis while promoting
the best possible care for those suffering from it also under the auspices of the Arthritis Society are
five specific disease associations: ONTARIO FIBROMYALGIA ASSOCIATION, ONTARIO
JUVENILE ARTHRITIS ASSOCIATION, ONTARIO LUPUS ASSOCIATION,
ONTARIO SPONDYLITIS ASSOCIATION, SCLERODERMA SOCIETY OF ONTARIO
ASSISTIVE DEVICES AND HOME OXYGEN PROGRAM (Ontario Ministry of Health)
1-800-268-6021
service for Ontario residents provided in English or French; caller should have Ontario
Health Card handy to expedite assistance; assists in paying for certain necessary
equipment and services – braces, splints, wheelchairs, prosthetic devices, respiratory
equipment, hearing aids, communication and vision aids, ostomy supplies,
pressure/burn,/scar garments, etc.
ASSOCIATION FOR NEUROLOGICALLY DISABLED OF CANADA
1-800-561-1497
to help the neurologically disabled (persons with traumatic brain injuries, cerebral
palsy, autism, strokes, developmental delays, learning disabilities or any injury having to
do with the head (no spinal cord injuries)) reach their full potential; home centered
rehabilitation programs, quarterly clinics
ASSOCIATION OF ONTARIO MIDWIVES
1-866-418-3773
regulatory body; information on midwifery; public education
ASTHMA ACTION HELPLINE (ONTARIO LUNG ASSOCIATION)
1-800-668-7682
information on asthma and its management
ASTHMA SOCIETY OF CANADA
1-866-787-4050
distributes educational materials; develops and assists volunteer and support groups; funds asthma
research; provides camps for children with asthma; information and referral
ATAXIA-TELANGIECTASIA (AT) CHILDREN’S PROJECT (USA)
1-800-543-5728
information and support; support of research, fundraising for this genetic disorder
AUTISM SOCIETY OF AMERICA
1-800-328-8476
information, assistance, support, advocacy to individuals with autism and their families
AUTISM TODAY
1-866-9AUTISM (928-8476)
literature about autism
B
BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION (USA)
1-800-448-4570
promoting research, civil and human rights of children and young adults with Batten Disease
BELL CANADA SPECIAL NEEDS DEPARTMENT
1-800-268-9243
information on telephone equipment for persons with impaired vision, hard of hearing, physical disabilities, and other special telephone needs
BELLWOOD HEALTH SERVICES
1-800-387-6198
residential and outpatient programs; alcohol and drug problems, smoking cessation; eating
disorders, stress-related illnesses, problem gambling, sexual addiction and other compulsive
disorders; individual counselling, group therapy; family counselling and education
BLOORVIEW KIDS REHAB
[except Toronto] 1-800-363-2440
[Toronto only] 416-425-6220
chronic care, rehabilitation, inpatient and outpatient services; major areas: neurorehabilitation,
cleft lip and palate, neurodevelopment (cerebral palsy, epilepsy), musculoskeletal (amputee,
arthritic, orthopedic, neuromuscular conditions, spina bifida and spinal cord injuries);
community outreach, driver rehabilitation, prosthetics, myoelectrics, communication and writing aids
BRAIN TUMOUR FOUNDATION OF CANADA
1-800-265-5106
quarterly newsletter; information for friends, families, patients; referral to support groups
BREAKAWAY
1-800-836-6209
Outreach program, street involvement; justice system involvement; methadone program; day
treatment and outpatient program for youth 13-18 with addiction and mental health problems;
consultation and support for family and significant others
BRITISH INSTITUTE OF HOMEOPATHY, see HAHNEMANN COLLEGE FOR
HOMEOPATHY
C
CANADIAN AIDS SOCIETY
1-800-884-1058
coalition of community-based groups confronting HIV infection and AIDS; counselling, education
and prevention materials and programs; advocacy; telephone hotlines; home support; referral
services; buddy support programs; street outreach programs; assistance to friends and families of
persons living with AIDS; hospice care and housing; programs tailored to groups with special needs;
training of health care and other professionals; conducts studies and surveys; consultation
services to all levels of government; to defend the human rights of those with AIDS
CANADIAN ARRYTHMIA DEATH SYNDROME (SADS) FOUNDATION
1-877-525-5995
CANADIAN ASSOCIATION FOR PEOPLE WHO STUTTER (CAPS)
[except Toronto] 1-888-STUTTER (788-8837)
[Toronto only] 416-252-TALK (252-8255)
provide people who stutter, their family and friends, speech-language pathologists, academics,
students and members of the general public with information on stuttering resources available both
in Canada and abroad
CANADIAN ASSOCIATION OF OCCUPATIONAL THERAPISTS
1-800-434-2268
professional organization, to provide support, leadership and services to members
CBI HEALTH (Canadian Back Institute)
1-800-463-2225
no public information; group of occupational and physiotherapists; consults from orthopaedic surgeons
CANADIAN BLOOD SERVICES
1-888-236-6283
formerly Canadian Red Cross; answer questions, provide information, referrals on transmissible
diseases (e.g. Creutzfeldt-Jakob Disease (degenerative condition of the brain), etc.), bone marrow & blood donation; will take messages and return calls
CANADIAN BREAST CANCER FOUNDATION
1-800-387-9816
public awareness, support research, treatment advances
CANADIAN CANCER SOCIETY
1-888-939-3333
national organization to eradicate cancer and improve the quality of life for people living with
cancer; oversees SMOKERS’ HELPLINE, CANCER CONNECTION, CANCER INFORMATION SERVICE
CANADIAN CANCER SOCIETY (Ontario Division)
1-800-268-8874
provide information; referral to services
CANADIAN CELIAC ASSOCIATION
1-800-363-7296
provide services and support to persons with celiac and dermatitis herpetiformis through programs
of awareness, advocacy, education and research
CANADIAN CENTRE FOR OCCUPATIONAL HEALTH & SAFETY
1-800-668-4284
Canada’s national resource for occupational health and safety information, the Inquiries Service
dept. answers questions on any health or safety concerns people have about the work they do.
Available to all Canadians in English and French, it is accessible by phone, fax, mail and e-mail.
Questions are answered with non-technical or technical information, depending on the needs of
the inquirer. There are some prepared packages to answer frequently asked questions. Response
times vary depending on the complexity of the questions and workload of staff.
CANADIAN CHIROPRACTIC ASSOCIATION
1-800-668-2076
no public information
CANADIAN CONTINENCE FOUNDATION
1-800-265-9575
provide general information packages
CANADIAN CYSTIC FIBROSIS FOUNDATION
1-800-378-CCFF (378-2233)
information and referral to chapters; provide information, support groups for parents and spouses;
public awareness; special events, funding for clinics
CANADIAN DENTAL ASSOCIATION
1-800-267-6354
primarily professional resource; promote and provide good oral health; no public resources
CANADIAN DIABETES ASSOCIATION
1-800-BANTING (226-8464)
information and literature on nutrition and health care; support groups; information on summer
camps for children 8-15; membership fee
CANADIAN DOWN SYNDROME SOCIETY
1-800-883-5608
dedicated to enhancing the quality of life for all individuals who have Down Syndrome
CANADIAN FOOD INSPECTION AGENCY
1-800-442-2342
Food Health Hazard Service Line [Canadian Food Inspection Agency]
1- 800-701-2737
deliver all federal inspection services related to food; animal health; and plant protection
CANADIAN FOUNDATION FOR THE STUDY OF INFANT DEATHS
1-800-END-SIDS (363-7437)
dedicated to responding to the needs of Canadian families affected by Sudden Infant Death
Syndrome (SIDS); information, referral, emotional support
CANADIAN HARD OF HEARING ASSOCIATION
1-800-263-8068
advocacy, education
CANADIAN HEMOCHROMATOSIS SOCIETY
1-877-223-4766
an inherited disease in which too much dietary iron is absorbed, occurs almost exclusively in
men; maintains a central registry of all known individuals with hemochromatosis and their families;
provides support and information; membership fee on a sliding scale; semi-annual newsletter
CANADIAN HEMOPHILIA SOCIETY
1-800-668-2686
information; education; referral to self-help groups
CANADIAN LIFE AND HEALTH INSURANCE ASSOCIATION
1-800-268-8099
information for companies only, regarding insurance and health; provide information and educational resources to the public
CANADIAN LIVER FOUNDATION
1-800-563-5483
reduce the incidence and impact of liver disease by providing support for research and education
into the causes, diagnosis, prevention and treatment; local chapter referrals
CANADIAN MARFAN ASSOCIATION
1-866-722-1722
support, education and public awareness
CANADIAN MEDICALERT FOUNDATION
1-800-668-1507/ ENG
1-800- 668- 6381/ FRE
provide comprehensive lifelong service for Canadians with medical needs; provide health care
professionals instant access to reliable medical information
CANADIAN NATIONAL INSTITUTE FOR THE BLIND, see CNIB
CANADIAN PALLIATIVE CARE ASSOCIATION
1-800-668-2785
Public awareness; advocacy; standards; education
CANADIAN PARAPLEGIC ASSOCIATION OF ONTARIO
1-877-422-1112
information, counselling and referral services; peer support for newly injured persons; volunteer visitors; vocational rehabilitation; advocacy
CANADIAN PHARMACISTS ASSOCIATION
1-800-917-9489
CANADIAN PHYSIOTHERAPY ASSOCIATION
1-800-387-8679
professional organization; provide referrals to physiotherapists
CANADIAN PODIATRIC MEDICAL ASSOCIATION
1-888-220-3338
CANADIAN SOCIETY FOR AESTHETIC PLASTIC SURGERY
1-800-263-4429
professional organization, no public services
CANADIAN SOCIETY FOR MUCOPOLYSACCHARIDE & RELATED DISEASES
1-800-667-1846
to provide support for families whose children are affected with lysosomal storage diseases; to
bring about more public awareness of lysosomal storage diseases; to raise funds to further research
in the hopes of finding a cure for these diseases
CANADIAN SOCIETY OF PLASTIC SURGEONS
1-800-665-5415
professional organization, no public services
CANADIAN SOCIETY OF INTESTINAL RESEARCH
1-866-600-4875
develop patient information brochures on inflammatory bowel disease (Crohn's disease, ulcerative
colitis, and ulcerative proctitis), diverticular disease, gastroesophageal reflux disease, hemorrhoids,
hiatus hernia, irritable bowel syndrome, intestinal gas, ulcer disease, pancreatitis, stress management,
and support groups
CANADIAN SPINAL RESEARCH
1-800-361-4004
Fundraising and research organization
CANCER CONNECTION
1-800-263-6750
telephone peer support program; matches people with cancer and their caregivers with trained
volunteers who have had similar experiences;
CANNABIS MEDICAL ACCESS, see OFFICE OF CANNABIS MEDICAL ACCESS
CHILDHOOD CANCER FOUNDATION CANDLELIGHTERS CANADA
1-800-363-1062
parent/family workshops; conferences; Teen Network; mail order service through resource
centre; to serve families of children with cancer by providing info, advocacy and encouraging
and assisting in the development of local parent support groups
CENTRE FOR ADDICTION AND MENTAL HEALTH
1-800-463-2338
assessments, referrals, individual and group therapy, day and residential programs, support
groups, counselling
CENTRE FOR INDEPENDENT LIVING IN TORONTO
1-800-354-9950
information and referral on disability issues; peer support; independent living skills training
CENTRE MEDICO-SOCIAL COMMUNAUTAIRE
1-800-268-1697
Francophone community health centre with medical, social, community services; free French
Medical Interpreter Service
CEREBRAL PALSY, see ONTARIO FOUNDATION FOR CEREBRAL PALSY
CHILDREN’S CRANIOFACIAL ASSOCIATION
1-800-535-3643
dedicated to improving the quality of life for individuals with craniofacial disorders (including
cleft palate) and their families
CHRONIC FATIGUE AND IMMUNE DYSFUNCTION SYNDROME ASSOCIATION
OF AMERICA, see CFIDS ASSOCIATION OF AMERICA
CNIB LIBRARY (CANADIAN NATIONAL INSTITUTE FOR THE BLIND)
1-800-268-8818
walk-in library service; provide information over the phone
COLLEGE OF CHIROPODISTS OF ONTARIO
1-877-232-7653
Regulatory college; assistance in locating a chiropodist or podiatrist
COLLEGE OF MASSAGE THERAPISTS OF ONTARIO
1-800-465-1933
professional organization regulating the massage therapy profession in Ontario
COLLEGE OF MEDICAL LABORATORY TECHNOLOGISTS OF ONTARIO
1-800-323-9672
licensing and regulatory body for medical laboratory technologists
COLLEGE OF MEDICAL RADIATION TECHNOLOGISTS OF ONTARIO
1-800-563-5847
professional organization; no public services
COLLEGE OF NURSES OF ONTARIO
[except G.T.A] 1-800-387-5526
[G.T.A. only] 416-928-0900
professional organization.; governing body for RNs and RPNs; will take complaints
COLLEGE OF OCCUPATIONAL THERAPISTS OF ONTARIO
1-800-890-6570
professional organization, will provide referrals
COLLEGE OF OPTOMETRISTS OF ONTARIO
1-888-825-2554
professional organisation; will provide referrals
COLLEGE OF PHYSIOTHERAPISTS
1-800-583-5885
professional organisation; will provide referrals
COLLEGE OF PHYSICIANS & SURGEONS OF ONTARIO
[except Toronto] 1-800-268-7096, ext. 306
[Toronto only] 416- 967-2603
medical regulatory board; investigates complaints relating to doctors’ professional services and conduct, including complaints of sexual abuse; assists people in locating a doctor
COTA: COMPREHENSIVE REHABILITATION AND MENTAL HEALTH SERVICES
1-888-785-2779
Comprehensive range of client centred mental health and rehabilitation service,
provided by staff, therapists and volunteers in the community setting of
the individuals choice
CONSUMER HEALTH INFORMATION SERVICE (Toronto Reference Library)
[except Toronto] 1-800-667-1999
[GTA] 416-393-7056
on-site and telephone reference service by trained health science librarians
CONSUMER HEALTH ORGANIZATION OF CANADA
1-877-389-0996
information on holistic health; alternative health practitioner referrals; lending library
CROHN’S AND COLITIS FOUNDATION OF CANADA
[except Toronto] 1-800-387-1479
[GTA] 416- 920-5035
fund medical research on inflammatory bowel diseases; info, education, referral to local chapters
D
DART, see ONTARIO DRUG AND ALCOHOL REGISTRY OF TREATMENT
DEPRESSION AND BIPOLAR SUPPORT ALLIANCE
1-800-826-3632
dedicated to educating patients, families, professionals, and the public about the nature of
depressive and bipolar illnesses as treatable medical diseases; to foster self-help for patients and
families; to eliminate discrimination and stigma; to improve access to care; and to advocate for
research toward the elimination of these illnesses
DYING WITH DIGNITY
1-800 -495-6156
M - Th 9:30 – 5, Fri. 9:30 - 4; counselling on options for terminally ill
DYSTONIA MEDICAL RESEARCH FOUNDATION CANADA
1-800-361-8061
a disease causing abnormal muscle rigidity, causing painful muscle spasms, unusually fixed
postures, or strange movement patterns; referrals to patient and family support groups and programs
E
EAR (EDUCATION & AUDITORY RESEARCH) FOUNDATION (USA)
1-800-545-4327
dedicated to integrating persons who have hearing impairments into the mainstream; network of
patient support groups
EASTER SEALS SOCIETY ONTARIO
1-800-668-6252
parent-to-parent link; networking with parents of children with physical disabilities; information
education; outreach; training; advocacy; financial assistance with the cost of medically prescribed
equipment
EATING DISORDERS INFORMATION CENTRE, see NEDIC
ENDOCRINE SOCIETY
1-800-467-6663
Dedicated to enhancing the understanding of hormonal communication at the molecular, cellular,
and systems levels in order to promote improved prevention, diagnosis, and treatment of
endocrine disorders
ENDOMETRIOSIS ASSOCIATION
1-800-992-3636
information; referrals to support groups
EPILEPSY CANADA
1-877-734-0873
dedicated to enhancing the quality of life for persons affected by epilepsy
EPILEPSY ONTARIO
1-800-463-1119
referrals to support groups; information; education; newsletter; membership fee on a sliding basis
EPILEPSY TORONTO
1- 866- 374- 5377
Individual and family counselling; parent, adult and youth support
F
FACES: THE NATIONAL CRANIOFACIAL ASSOCIATION (USA)
1-800-332-2373
provide families with financial assistance for travel to major medical centres for reconstructive
surgery; offer information and support to affected families
FAMILIES OF SPINAL MUSCULAR ATROPHY (USA)
1-800-886-1762
offering support to families; promoting and supporting research and public education
FASD (FETAL ALCOHOL SPECTRUM DISORDER) INFORMATION AND CONSULTATION SERVICE
1-800-559-4514
information reference service; directory of support services, referrals for public; provide info
packages, provide FAS listserv
FETAL ALCOHOL SYNDROME, see FASD above
5p- SOCIETY
1-888-970-0777
information and support to individuals with a deletion of the short arm (p) of the chromosome 5
and their families
FOOD ALLERGY AND ANAPHYLAXIS NETWORK
1-800-929-4040
bringing about a clearer understanding of the issues surrounding food allergies and helping
affected individuals lead a normal life while following restricted diets
FOUNDATION FIGHTING BLINDNESS (Canada)
1-800-461-3331
M-F.9-5; newsletter; information; education on retinitis pigmentosa, macular degeneration, Usher’s
syndrome, and related diseases
FOUNDATION FIGHTING BLINDNESS (USA)
1-888-394-3937
FOUNDATION FOR NAGER AND MILLER SYNDROMES
1-800-507-3667
support group for people with these two similar conditions
G
GENETIC ALLIANCE
1-800-336-GENE (336-4363)
genetics education and resource centre; trained staff who are available to answer your
questions about genetics and connect you to quality genetic resources
GENETIC SUPPORT GROUPS, see PROVINCIAL IODE GENETIC SUPPORT GROUPS
GENITAL HERPES INFORMATION (Sponsored by Glaxo-Smith-Kline Co)
1-888-426-9555
automated info line; information, treatment, prevention; support services; will mail information
packages
GUILLAIN-BARRE SYNDROME, see MUSCULAR DYSTROPHY ASSOCIATION
H
HAHNEMANN COLLEGE FOR HOMEOPATHY AND HEILKUNST
1-800-579-HEAL (579-4325)
formerly British Institute of Homeopathy (Canada); offer correspondence; in-class courses
HEAD INJURY ASSOCIATION, see ONTARIO BRAIN INJURY ASSOCIATION
HEART & STROKE HEALTHLINE
1-888-473-4636
Heart & Stroke Foundation of Ontario; general information; answer questions; provide referrals
HEMOPHILIA SOCIETY OF ONTARIO
1-888-838-8846
advocacy; fundraising; patient and public education
HEPATITIS FOUNDATION INTERNATIONAL (USA)
1-800-891-0707
support and information; physicians’ referral; increasing awareness of the world-wide problem of
viral hepatitis
HISTIOCYTOSIS ASSOCIATION OF AMERICA
1-800-548-2758
disease in which there is an overgrowth of a type of tissue cell called a histiocyte; offers support
to patients and their families, promotes public education and produces educational materials
HIV HEALTHLINE (Hospital for Sick Children)
1-888-246-5840
confidential counselling for pregnant women about the risk of HIV infection and about HIV
treatment during pregnancy
HOME AND VEHICLE MODIFICATION PROGRAM (Ontario March of Dimes)
1-877-369-4867
financial assistance to adult Ontario residents with ongoing mobility impairments, and to their
families and landlords
HOME OXYGEN PROGRAM, see ASSISITIVE DEVICES AND HOME OXYGEN PROGRAM
HOSPICE ASSOCIATION OF ONTARIO
1-800-349-3111
information and referral; supports development of voluntary community hospice and palliative
care movement
HUMAN GROWTH FOUNDATION (USA)
1-800-451-6434
dedicated to expanding and accelerating medical research into growth and growth disorders.
Composed of concerned parents and friends of children and adults with growth problems and
interested health professionals
HUNTINGTON SOCIETY OF CANADA
1-800-998-7398
referrals for medical diagnosis and treatment; psychological and psychiatric counseling; assists
in arranging social, recreation and support services to help individuals remain in the community;
assists in arranging long term care; education; consultation; literature; newsletter; counseling; crisis
intervention; discussion groups
I
INCONTINENCE, see CANADIAN CONTINENCE FOUNDATION
INDUSTRIAL ACCIDENT PREVENTION ASSOCIATION
1-800-406-4272
occupational health and safety training; consulting services for businesses; publications, videos
INFERTILITY AWARENESS ASSOCIATION OF CANADA
1-800-263-2929
provide telephone support; information packages; support groups; buddy system; advocacy;
newsletter
INTERNATIONAL ACADEMY OF HEALTH EDUCATION
1-800-267-8732
toll-free number is registration line for courses offered by the college; formerly CANADIAN
COLLEGE OF NATURAL HEALING
INTERNATIONAL CHILDREN’S ANOPHTHALMIC NETWORK
1-800-580-4226
lending support to individuals who want to learn more about microphthalmia and anophthalmia
INTERNATIONAL MYELOMA FOUNDATION
1-800-452-2873
dedicated to improving the quality of life for people affected by myelomas, tumors of the bone
marrow
INTERNATIONAL RETT SYNDROME ASSOCIATION (USA)
1-800-818-7388
information and referral centre for physicians and families of children with Rett Syndrome
J
JUVENILE DIABETES RESEARCH FOUNDATION OF CANADA
1-877-287-3533
research; education; advocacy; fundraising; support groups. Based in Markham, ON
K
KENNEDY KRIEGER INSTITUTE (USA)
1-888-554-2080
develops and provides medical, educational, and community interventions for infants, children,
and adolescents with development disorders of the brain
(NATIONAL) KIDNEY CANCER ASSOCIATION
1-800-850-9132
Comprised of people who have been affected by kidney cancer, their families and friends,
physicians, and researchers; newsletter, meeting, information
KIDNEY FOUNDATION OF CANADA (Central Ontario Branch)
1-800-387-4474
provides service to individuals living with kidney disease, advocacy and awareness, medical
research, public education, self help groups, financial assistance, social groups
KIDS HELPPHONE
1-800-668-6868
bilingual, 24 hour counselling service for children and teens
L
LACTAID HOTLINE
1-800-387-5711
provided by Lactaid-McNeil; information on Lactaid as well as lactose intolerance; will provide
information packages by mail
La LECHE LEAGUE CANADA – TORONTO
1- 800-665 - 4324
Information on breastfeeding; discussion groups; speakers
LASER EYE SURGERY, see GIMBEL EYE CENTRE
LEUKEMIA & LYMPHOMA SOCIETY (USA)
1-800-955-4572
dedicated to cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and to improve the quality
of life of patients and their families
LEUKEMIA RESEARCH FUND
1-800-268-2144
information, education, fundraising
LUNG ASSOCIATION OF CANADA
1-800-668-7682
fundraising; literature and educational material; newsletter
LUNG ASSOCIATION OF (TORONTO) ONTARIO
1-800-972-2636
financial support for research; information on various lung diseases and disorders; stop smoking
programs; TB resource centre; educational materials, speakers, newsletter
LUPUS CANADA
1-800-661-1468
acts as co-ordinating body in areas of public awareness and developing of patient education
material; to support growth and development of lupus organisations in Canada
LUPUS FOUNDATION OF ONTARIO
1-800-368-8377
newsletter; provide emotional support to patients; to focus lay and professional attention on lupus;
raise money for research
M
MAGIC FOUNDATION
1-800-362-4423
helping children and adults whose physical growth is affected by a medical problem
MALIGNANT HYPERTHERMIA ASSOCIATION
1-800-986-4287
[hotline] 1-800- 644 -9737
Dedicated to reducing morbidity and mortality related to malignant hypothermia; HOTLINE
provides medical professionals with access to physicians who specialize in MH crises treatment 24
hours per day, 365 days per year; provide added expertise and support to medical professionals in
successfully managing a MH crisis or to answer pre-, post- or intra-operative anaesthesia questions.
MARCH OF DIMES (Central division)
1-800-263-3463
assist all physically disabled adults in Ontario achieve meaningful and dignified lives; public
education, advocacy; conductive education clearinghouse; employment services; recreation; research;
information services; attendant care; government relations; post-polio syndrome information
MEDICAL CANNABIS, see OFFICE OF CANNABIS MEDICAL ACCESS
MEDICAL DEVICE UNIT (Health Canada)
1-800-267-9675
Federal Government Information line; dealing with medical devices; leave your name, number, brief
description of problem you are having with a medical device; includes breast implant information
MENINGITIS FOUNDATION OF AMERICA
1-800-668-1129
Information and support to individuals who have had personal experience with meningitis, their
families, health care professionals, and the general public
MENINGITIS RESEARCH FOUNDATION OF CANADA
1-800-643-1303
support and education to patients affected by meningitis and their families
MOOD DISORDERS ASSOCIATION OF ONTARIO
1-888-486-8236
support and information for people suffering from depression, manic depression and
other mood-related disorders
MOTHERISK ALCOHOL AND SUBSTANCE ABUSE HOTLINE
1-877-327-4636
working in conjunction with the Hospital for Sick Children’s Motherisk Program, this
national service provides information about the effects of drugs, alcohol, and/or smoking
on pregnancy and breastfeeding to pregnant women and their health-care providers;
M-F 9 - 5; staffed by a multi-disciplinary team; referrals.
MULTIPLE ORGAN RETRIEVAL & EXCHANGE PROGRAM, see TRILLIUM GIFT OF
LIFE NETWORK
MULTIPLE SCLEROSIS SOCIETY OF CANADA
1-800-268-7582
short term supportive counselling; information; assessment and referral; loan of assistive devices;
subsidies for equipment; home cleaning if eligible; client intervention and assistance; limited friendly
visiting; advocacy; public education including workshops for families, friends and health
professionals; recreation programs; self help, support and newly diagnosed groups, resource library;
newsletter
MUSCULAR DYSTROPHY ASSOCIATION
1-866-687-2538
information, advocacy and referrals to home support services for persons with neuromuscular
disorders; assists with purchase of standard medical equipment; research funding; community
workshops; education materials. M-F 8:30-4:30; also 24 hour info. line
MYALGIC ENCEPHALOMYELITIS ASSOCIATION OF ONTARIO
416-222 -8820
** Long Distance Calls returned by “Collect Call”
MYASTHENIA GRAVIS FOUNDATION OF AMERICA
1-800-541-5454
Assisting people with Myasthenia Gravis through programs of research, education, information,
and patient services
N
NATIONAL CERVICAL CANCER COALITION
1-800-685-5531
educating the public and health care professionals about issues related to cervical cancer; information, peer Support (Phone pals)
NATIONAL CLEARINGHOUSE ON FAMILY VIOLENCE (Health Canada)
1-800-267-1291
national resource centre; distribute info packages, fact sheets, pamphlets etc. dealing with family violence. Available 9:30-4:30 M-F.
NATIONAL CLEARINGHOUSE ON TOBACCO & HEALTH
1-800-267-5234
provide information over phone
NATIONAL DOWN SYNDROME CONGRESS
1-800-232-6372
committed to building a sense of community among all those concerned with Down Syndrome
NATIONAL EATING DISORDERS ASSOCIATION
1-800-931-2237
serves the United States and Canada and is dedicated to increasing awareness of and preventing
eating disorders
NATIONAL ECZEMA ASSOCIATION
1-800-818-7546
Dedicated to informing, educating, and providing resources for individuals affected by eczema;
increase public awareness of the disease; support research
NATIONAL FRAGILE X FOUNDATION (Denver, Colorado)
1-800-688-8765
the most common cause of mental retardation after Down’s syndrome; an inherited defect of the X
chromosome; promote public awareness and support research; produce a variety of educational and
support info, including a newsletter
NATIONAL GAUCHER FOUNDATION
1-800-925-8885
supporting medical research; information. 9 AM-5 PM EST.
NATIONAL HYDROCEPHALUS FOUNDATION (USA)
1-888-857-3434
to establish and facilitate a common network, provide informational and educational assistance for
individuals and families affected by hydrocephalus; increase public awareness
NATIONAL LYMPHODEMA NETWORK (USA)
1-800-541-3259
provide support and information
NATIONAL MENTAL HEALTH CONSUMER SELF-HELP CLEARINGHOUSE (USA)
1-800-553-4539
self-help service and advocacy
NATIONAL NEUROFIBROMATOSIS FOUNDATION (USA)
1-800-323-7938
dedicated to improving the well-being of individuals and families affected by Neurofibramatosis
Type I (NF1) and Type II (NF2)
NATIONAL OVARIAN CANCER ASSOCIATION (NOCA)
1-877–413-7970
NATIONAL ORGANIZATION FOR RARE DISORDERS, see NORD
NATIONAL PSORIASIS FOUNDATION (USA)
1-800-723-9166
information, resources, research
NATIONAL REYE’S SYNDROME FOUNDATION (USA)
1-800-233-7393
To provide emotional support and guidance to families experiencing the trauma of Reye’s
Syndrome; to promote research and awareness
NATIONAL ROSACEA SOCIETY (USA)
1-888-662-5874
Information and support to people with Acne Rosacea
NATIONAL SPASMODIC DYSPHONIA ASSOCIATION (USA)
1-800-795-6732
devoted to the interests of individuals with Spasmodic Dysphonia and the physicians, speech
pathologists, medical schools, and voice treatment centres that serve them; www.dysphonia.org
NATIONAL SPASMODIC TORTICOLLIS ASSOCIATION
1-800-487-8385
support for affected individuals and family members; raising awareness; promoting research
NATIONAL SPINAL CORD INJURY ASSOCIATION (USA)
1-800-962-9629
dedicated to enabling people with spinal cord injury (SCI) to make choices and take actions to
achieve their highest level of independence and personal fulfilment; www.spinalcord.org
NATIONAL STUTTERING ASSOCIATION
1-800-937-8888
provides education, support, and empowerment tools to children and adults who stutter
NATIONAL TAY-SACHS AND ALLIED DISEASES ASSOCIATION (USA)
1-800-906-8723
dedicated to the prevention and eradication of Tay-Sachs, Canavan, and 40 related genetic disorders
NAUSEA VOMITING PREGNANCY HELPLINE (Hospital for Sick Children)
1-800-436-8477
part of Motherisk; help for pregnant women suffering from nausea and vomiting
NEUROPATHY ASSOCIATION (USA)
1-800-247-6968
established to help people with disorders that affect the peripheral nervous system (peripheral
neuropathy); support, information, newsletter, membership services
NEUROFIBROMATOSIS SOCIETY OF ONTARIO
1-866-843-6376
support group; public education
NEUTROPENIA SUPPORT ASSOCIATION
1-800-663-8876
diminished or virtual absence of neutrophils from the blood; provide information and
referrals, support for parents/patients
NEVUS OUTREACH
1-877-426-3887
dedicated to improving medical knowledge and treatment for individuals with giant congenital nevi
and related disorders such as neurocutaneous melanosis; support and information
NOONAN SYNDROME SUPPORT GROUP
1-888-686-2224
sharing of information and encouragement among individuals whose lives have been affected by
Noonan syndrome
NORD (NATIONAL ORGANIZATION FOR RARE DISORDERS) (USA)
1-800-999-6673
reprints of disease articles from NORD’S Rare Diseases Database are available for purchase. The
disorders are written in understandable language for patients and families. Each entry lists the
disease name, synonyms, a general description of the disorder, symptoms, causes, affected population,
standard treatments, investigational treatments [when applicable] and resources to be contacted for
further information. Canadian callers can leave a message on the machine and the call will be returned
NVP HELPLINE, see NAUSEA VOMITING PREGNANCY
O
OCCUPATIONAL HEALTH CLINICS FOR ONTARIO WORKERS
[except Toronto] 1-888-596-3800
[Toronto only] 416-449-0009
navigational support for workplace health and safety questions
OFFICE OF CANNABIS MEDICAL ACCESS (HEALTH CANADA)
1-866-337-7705
administers regulations that permit individuals to access marijuana (cannabis) for medical
purposes; research
OLEY FOUNDATION (USA)
1-800-776-OLEY (776-6539)
educational and emotional support, outreach activities, and clinical outcome information for
individuals who depend on home intravenous (parenteral) and tube (enteral) nutrition
OMBUDSMAN FOR ONTARIO
1-800-263-1830
ONTARIO AIDS NETWORK
1-800-839-0369
HIV/AIDS services; advocacy on behalf of 50 member organisations; information and referral
ONTARIO ASSOCIATION FOR MARRIAGE & FAMILY THERAPY
1-800-267-2638
professional organization, referrals, division of American Association for Marriage and Family
Therapy
ONTARIO ASSOCIATION OF NATUROPATHIC DOCTORS
1-877-628-7284
information and referral on naturopathic medicine and licensed naturopathic doctors
ONTARIO ASSOCIATION OF SPEECH LANGUAGE PATHOLOGISTS & AUDIOLOGISTS
1-800-718-6752
referrals to registered professionals
ONTARIO BRAIN INJURY ASSOCIATION (formerly Head Injury Assoc. Of Ontario)
1-800-263-5404
provide advocacy, lobbying, resource and support services for persons affected by an acquired brain
injury; assists members and their families in coping with prolonged disabilities associated with
brain injury
ONTARIO BREAST CANCER RESOURCE AND SUPPORT CENTRE, see WILLOW
ONTARIO BREAST SCREENING PROGRAM
1-800-668-9304
breast self-examination information and teaching, multi-lingual; call to locate local sites
ONTARIO CHIROPRACTIC ASSOCIATION
1-877-327-2273
provide referrals; primarily a support for members of the professional association
ONTARIO DENTAL ASSOCIATION
1-800-387-1393
patient/dentist mediation for area outside Greater Toronto; provide referrals to dentists, dental
surgeons
ONTARIO DRUG AND ALCOHOL REGISTRY OF TREATMENT (DART)
1-800-565-8603
confidential telephone information and referral service; types of treatment agencies and referral
procedures
ONTARIO FEDERATION FOR CEREBRAL PALSY
1-877-244-9686
to improve the quality of life of persons with cerebral palsy through a broad range of programs,
education, support of research and the delivery of needed services to people with cerebral palsy
and their families
ONTARIO FIBROMYALGIA ASSOCIATION, see ARTHRITIS SOCIETY
ONTARIO HIV TREATMENT NETWORK
1-877-743-6486
works to improve care and treatment of people living with HIV/AIDS in Ontario; no service to
public
ONTARIO HOMEOPATHIC ASSOCIATION
1-888-318-6510
ONTARIO JUVENILE ARTHRITIS ASSOCIATION, see ARTHRITIS SOCIETY
ONTARIO LUNG ASSOCIATION
1-888-566-5864
ONTARIO LUPUS ASSOCIATION, see ARTHRITIS SOCIETY
ONTARIO MASSAGE THERAPISTS ASSOCIATION
1-800-668-2022
referrals to registered massage therapists by geographic area, language, wheelchair accessibility,
and home/workplace visits availability
ONTARIO MEDICAL ASSOCIATION
1-800-268-7215
physician Inquiry Service (referrals) 9 am -12pm, 2pm - 4pm; to serve the medical profession and
the people of Ontario in the pursuit of good health and excellence in health care
ONTARIO MINISTRY OF HEALTH GENERAL INFORMATION LINE
1-800-268-1154
health education materials and brochures on Ministry programs; public inquiries;
ONTARIO NURSES ASSOCIATION
1-800-387-5580
professional association, to improve the socio-economic welfare of members
ONTARIO PALLIATIVE CARE ASSOCIATION
1-888-379-6666
information; advocacy
ONTARIO PODIATRIC MEDICAL ASSOCIATION
1-866-424-6762
professional association; referrals including basic foot care, orthopaedic care (orthotics), practitioners
who may make house calls
ONTARIO PREVENTION CLEARINGHOUSE
1-800-263-2846
provide information, referral and counselling advice to the health promotion field. Unable to assist
the general public other than referral to more appropriate resources
ONTARIO PROBLEM GAMLING HELPLINE
1-888-230-3505
problem gamblers and professionals working with them, friends, family, co-workers
ONTARIO REGIONAL POISON INFORMATION CENTRE (Hospital for Sick Children)
1-800-268-9017
information, 24 hrs.
ONTARIO RESIDENTIAL CARE ASSOCIATION (ORCA)
1-800-361-7254
information and advice about province’s retirement homes; checklist for reviewing retirement
homes; complaints/concerns about retirement/nursing homes
ONTARIO SPONDYLITIS ASSOCIATION, see ARTHRITIS SOCIETY
ORGAN DONATION, see TRILLIUM GIFT OF LIFE NETWORK
OSTEOGENESIS IMPERFECTA FOUNDATION
1-800-981-2663
OSTEOPOROSIS SOCIETY OF CANADA
[Eng] 1-800-463-6842
[Fre] 1-800-977-1778
information, public education; research support; support groups, self help materials; literature;
walking tapes and exercise videos; automated information in English and French on osteoporosis
and menopause
OUR SISTERS' PLACE
1-866-363-6663
information and support for women. postpartum depression; depression during perimenopause; depression in the prementrual phase.
P
PARENT-TO-PARENT LINK, see EASTER SEALS SOCIETY ONTARIO
PARKINSON SOCIETY CANADA
[Eng]1-800-565-3000
[Fre] 1-800 -720 -1307
information, public awareness; weekly exercise and social groups for Parkinson patients and their
partners; discussion group for partners; newsletter
PHOENIX SOCIETY FOR BURN SURVIVORS
1-800-888-2876
self-help organization dedicated to helping burn survivors and their families return to happy and
productive lives following injury
PHYSICIAN INQUIRY SERVICE, see ONTARIO MEDICAL ASSOCIATION
PHYSIOTHERAPISTS OF ONTARIO
1-800-583-5885
licensing body
PRADER-WILLI SYNDROME ASSOCIATION
1-800-563-1123
fund research, residential development programs, and family advocacy projects; provides referrals,
educational materials; newsletter.
PRADER-WILLI SYNDROME ASSOCIATION (USA)
1-800-926-4797
PWS is a multisystem disorder diagnosed more often in males born after a prolonged gestation
period, often in the breech position. Primary features included infantile hypotonia, failure to thrive,
hypogonadism, short stature, and impaired intellectual and behavioural functioning. Hyperphagia
leads to obesity in childhood. Information and referrals are provided.
PROBLEM GAMBLING SERVICES
1-888-647-4414
offers services both on-site and over the phone for those who are struggling with issues related to
gambling and want to make some changes. Free and confidential to both gamblers and family members
PROSTHETIC CONSULTANTS, see ASSISTIVE DEVICES AND HOME OXYGEN PROGRAM
PROVINCIAL IODE GENETIC SUPPORT GROUPS
1-800-243-8416
Mon. Tues. Thurs. Fri. 8:30 - 4:30 ; information; referrals
PSORIASIS SOCIETY OF CANADA
1-800-656-4494
provide programs and services to people who suffer from psoriasis; encourage formation of
support groups; provide information to medical community, general public; promote and
encourage research. Based in Halifax, NS.
PSYCHIATRIC PATIENT ADVOCATE OFFICE
1-800-578-2343
administers and coordinates advocacy rights, advice services for patients admitted to current and former provincial psychiatric hospitals
R
RED CROSS, see CANADIAN BLOOD SERVICES
REENA (Toby & Henry Battle Developmental Centre)
1-877-324-4114
assessment, treatment and ongoing support in a non-denominational Jewish environment for
persons diagnosed with a developmental disability or dual diagnosis and their families
RESPONSIBLE GAMBLING COUNCIL OF ONTARIO
1-888-391-1111
information on treatment centres and self help groups for people with gambling problems;
outreach and public awareness; prevention programs for youth
RETINITIS PIGMENTOSA RESEARCH FOUNDATION, see FOUNDATION FIGHTING BLINDNESS
ROSACEA AWARENESS PROGRAM
1-888-ROSACEA (767-2232)
ROYAL COLLEGE OF DENTAL SURGEONS OF ONTARIO
1-800-565-4591
regulatory body
S
SAFE KIDS CANADA (sponsored by CIBC Insurance)
1-888-723-3847
National non-profit ORGANIZATION dedicated to preventing injuries to children. Messages
on a variety of health concerns with children (i.e.: car seats, home safety) are pre-recorded or you
may leave a request for an information package. Please leave full name, address, postal code, and
phone numbers should they require additional information about your request. Bilingual. They
also have extensive information available on their website.
SCHIZOPHRENIA SOCIETY OF ONTARIO
[except Toronto] 1-800-449-6367
[Toronto only] 416-449-6830
M - F 8:30 - 4:30; self-help groups; information; education
SCLERODERMA SOCIETY OF ONTARIO, see Arthritis Society
1-800-321-1433
10am - 4pm; provides information on scleroderma; advocacy; support groups, newsletter
SELF-HELP RESOURCE CENTRE
[except Toronto] 1-888-283-8806
[Toronto only] 416- 487-4355
“self-help Tool Kit” with resources, tip sheets, guidelines on starting/maintaining self-help groups, etc.
SENIORS’ INFORMATION (Ministry of Citizenship, Culture & Immigration)
1-800-267-7329
automated information line
SENIORS’ PROBLEM GAMBLING SUPPORT LINE
1-877-795-8442
SHARED SOLUTIONS (Montreal)
1-800-283-0034
a team of Registered Nurses provides information, support and
advice re: MS. M-F 8-8 EST. No pre-recorded messages or voice mail.
SHEENA’S PLACE
1-888-743-3627
ranges of services for persons with eating disorders, issues with food
and body shape or size
SHRINER’S HOSPITAL (Montreal)
1-800-361-7256
deals with paediatric orthopaedic diseases and conditions; hosts one of the leading medical genetics and bone and cartilage physiology research units in North America; on-site genetics unit
SIMON FOUNDATION FOR CONTINENCE (USA)
1-800-237-4666
educating both medical professionals and affected individuals about cure, treatment, and
management techniques
SMOKERS’ HELPLINE
1-877-513-5333
information, advice, support, M-Th 9-9, F 9-5, EST. In co-operation with CANADIAN CANCER SOCIETY
SOCIETY OF OBSTETRICIANS & GYNAECOLOGISTS OF CANADA
1-800-561-2416
professional organization representing and supporting obstetricians, gynaecologists; develop standards and practices; no public information
SPINA BIFIDA & HYDROCEPHALUS ASSOCIATION OF CANADA
1-800-565-9488
national organization; improve the quality of life of individuals with spina bifida and/or hydrocephalus and their families through awareness, education and research
SPINA BIFIDA & HYDROCEPHALUS ASSOCIATION OF ONTARIO
1-800-387-1575
library; Parent to Parent Link; youth support program; adult network; Kids in the Block awareness program; educational workshops, seminars and conferences; advocacy; research
ST. JOHN AMBULANCE
1-800-268-7581
First Aid coverage at public events; First Aid, Family Health Care, Child Care, Babysitting, Lifesaver, Heartsaver, Basic Rescuer, Infant/Child CPR, Adult and Oxygen Therapy courses; sale of
first aid kits; therapy dog program
STURGE-WEBER FOUNDATION
1-800-627-5482
for parents, professionals and others concerned with Sturge-Weber Syndrome
STUTTERING FOUNDATION OF AMERICA
1-800-992-9392
self-help organization; newsletter;
SUDDEN ARRHYTHMIA DEATH SYNDROME (SADS) FOUNDATION (USA)
1-800-786-7723
see also CANADIAN ARRYTHMIA DEATH SYNDROME [SADS] FOUNDATION
mission is to save the lives of children and young adults who are genetically predisposed to sudden death due to cardiac arrhythmias; foundation seeks to educate health care providers and the public
about SADS; to promote early diagnosis and treatment; serves as a physician referral resource centre; identify individuals and families at risk for these diseases and to assist families and friends affected by
Long QT Syndrome; distribute educational and informational materials
SUDDEN INFANT DEATH SYNDROME [SIDS], see CANADIAN FOUNDATION FOR
THE STUDY OF INFANT DEATHS
SUN SAFETY, see CANADIAN DERMATOLOGICAL ASSOCIATION
T
TELEHEALTH ONTARIO
1-866-797-0000
THYROID FOUNDATION OF CANADA
1-800-267-8822
help line – information and support; not open Mondays; public awareness; moral support to patients
and families; research fundraising
TOBACCO & HEALTH see NATIONAL CLEARINGHOUSE ON TOBACCO & HEALTH
TORONTO BLOOD CENTRE, see CANADIAN BLOOD SERVICES
TOURETTE’S SYNDROME FOUNDATION OF CANADA
1-800-361-3120
information and referral; individual and group support for patients and families; gathering and distributing information; promoting local self-help and professional services; research
TRILLIUM DRUG PROGRAM (Ontario Ministry of Health & Long Term Care)
1-800-575-5386
financial assistance covering drug, nutrition, blood-glucose testing and HIV/AIDS products listed in Ontario Drug Benefit Formulary
TRILLIUM GIFT OF LIFE NETWORK
1-800-263-2833
organ donations
TUBEROUS SCLEROSIS ALLIANCE (USA)
1-800-225-6872
dedicated to improving the quality of life of individuals and families affected by Tuberous Sclerosis; provides referrals to genetic counselling, support groups, and other services
TUBEROUS SCLEROSIS OF CANADA
1-800-347-0252
provide individual/family support; public awareness; research; provide information, newsletter; advocacy, referrals to genetic counselling, support groups, and other services
TURNER’S SYNDROME SOCIETY OF CANADA
1-800-465-6744
referrals to support and treatment centres; information packages including information on egg donor programs; self-help groups; resources; educational materials; research
U
UNITED OSTOMY ASSOCIATION (USA)
1-800-826-0826
support and information
UNITED OSTOMY ASSOCIATION OF CANADA
1-888-969-9698
providing supportive and educational services to individuals who have or will have ostomies
V
VESTIBULAR DISORDERS ASSOCIATION
1-800-837-8428
dedicated to providing informational services and support to people with dizziness, balance disorders, and related hearing problems
VHL (VON HIPPEL-LANDAU) FAMILY ALLIANCE (USA)
1-800-767-4845
dedicated to improving diagnosis, treatment, and quality of life of individuals and families affected by von Hippel-Lindau Disease (VHL)
W
WEGENER’S GRANULOMATOSIS ASSOCIATION (USA)
1-800-277-9474
dedicated to providing emotional and informational support to patients with Wegener’s granulomatosis (WG), to assisting them and their families in understanding the disease and recovery process, to educating and raising awareness in the general public and the medical community about WG, and to supporting research into the cause and cure of WG
WEGENER’S GRANULOMATOSIS SUPPORT GROUP OF CANADA
1-877-572-9474
WILLOW BREAST CANCER SUPPORT AND RESOURCE SERVICES
1-888-778-3100
[TTY/TYY] 1-877-778-2009
survivor-driven breast cancer services for women and men, their friends and family members; support groups; library; newsletter; database; workshops and orientation programs
